Vincent van der Wel

Director, Orfenix

Vincent van der Wel is the Director of Orfenix, which specialises in developing medicines that originate in academic research, ensuring they reach patients at an accessible price while maintaining sustainable returns for investors. By combining academic expertise with regulatory and clinical development know-how, Orfenix builds strong, collaborative partnerships between academia and industry. With a background in Medicine (Leiden University) and Health Economics (Erasmus University), Vincent has built a career focused on connecting research and practice. He has been involved in the establishment of five academic-industry collaborations, and is an active collaborator with Rare-NL, the Dutch expert group for rare diseases and repurposing. Vincent is also a co-author of the socially responsible licensing guideline in the Netherlands and has contributed to academic publications on public-private partnerships. Committed to collaboration and patient access, Vincent believes that public-private partnerships can offer a sustainable way to bring medicines to those who need them most.

Presentation: Patient One: A collaborative model for accessible treatments in rare diseases

Patient One is a collaboration of academia, pharma, development and clinical experts, patient representatives and social investors, developing a novel formulation for the treatment of cystinosis, for a sustainable price that guarantees patient access across Europe. The partnership is an initiative of the Fair Medicine foundation, following the Fair Medicine charter in its development. During the talk, Vincent van der Wel will discuss the development over the past years and will highlight the strengths and challenges of the collaboration model.

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